I've recently been thinking about how I portray myself on this blog and wondering if maybe I've been a bit of a fraud. Everything I've put on here is in fact me and things I have done, but I've neglected to share a part of myself that has really made me who I am today. I didn't think this would ever need to be an issue that would come up, but found myself questioning that when a beautiful girl whose blog I have been following for a little while recently passed away. Her name was Eva, and she had cystic fibrosis. Although she was young and vibrant and gave everything she had to making people aware of this disease and seems different to me, we shared a common ailment, I too have cystic fibrosis. Her passing made me question why I have always kept this part of me secret. I didn't like to tell my co-workers and hated having to tell my new boss when she took over the shop 18 months ago. I have never wanted people to think I'm different, to treat me differently, I just want to get on with the job at hand and get on with the job of living.
I have seen many people wait for their second chance at life and never receive that ultimate gift, and I have seen the other side of that when people get that second chance and go and make the best of it. And while my health now is quite good, at some point in the future I too will need someone to offer up that gift, and the more people who are aware of organ donation and make the decision to become an organ donor, the better my, and others, chances will be.
Maybe it's time for me to just take a step back from all that and say, look at all I can do with this disease. My parents were told initially that I probably wouldn't live to see the age of 8. At almost 35 maybe it's time to reflect on that, stop denying this part of myself and look at all I've achieved, and look at all I've still yet to achieve. I'm not looking for sympathy, I just wanted to honour a gorgeous young woman who fought so bravely and made such a difference in her short time on this earth. Maybe by sharing this and making people more aware about an everyday person living with something like this, I too can make a small difference. If you've ever thought about becoming an organ donor, I urge you to at least discuss this with your family and let them know what you want or go here to sign up on the register (In Australia).
If you've got this far, thanks for reading, if you have questions you can leave a message in the comments, I'm happy to answer anything. Once this is out there, there is no going back!